Chat summary: Pinterest

Here’s a short write-up of this week’s chat to help people catch up.

We draft these posts live during the chat to save time and hopefully capture the most important points that people make. If you think we’ve missed something really important please add it in the comments below.

Please do pass this around to your colleagues and friends!

Main points of discussion

1. Still very small audience but growing, mainly female dominated.
2. Currently lacks health category.
3. Issues around copyright.
4. Potential applications – self care tool, training tool, feedback mechanism, staff biogs,
5. Great collaborative instrument.
6. Could Pinterest be used by NHS campaigns people to share content openly?

Tweets of the evening
Caveat: not everything, just what we could keep up with!

JoBrodie #nhssm I use Pinterest to collect images illustrating the @chi_med project which focuses on interactive medical devices in wider context.

JoBrodie #nhssm For example we want to highlight that error is pervasive and can’t always be trained away, also looking at number entry systems used

dgfoord @MarkOneinFour Could there be an application for education where visual assessment’s everything, eg ECG interpretation, dermatology? #nhssm

VictoriaBetton We’re having a play with pinterest to curate our events and campaigns. Just started really. We are LeedsandYorkPFT. Feedback welcome! #nhssm

@MarkOneinFour: I think the three key in actions in pinterest are ‘launch’, ‘share’ and ‘curate’. All familiar social media themes #nhssm

JoBrodie @StuartBerry1 @sarahkatenorman yes this is why I restrict myself to Flickr images licensed under creative commons at the moment! #nhssm

SOLUS_ED @VictoriaBetton #nhssm Yeah could have a pictorial “Day in the Life of..” Different departments and members of staff.

Useful links shared

Source Description Link
@johnpopham @Gemma_Finnegan Do you want to see some laughable guff about Pinterest? http://t.co/gADF17KM
Gemma_Finnegan 15 minutes until tonight’s #nhssm – we’re talking Pinterest. Here’s some thoughts on how it can be used http://t.co/LTtuRUln
SOLUS_ED #nhssm Interesting link Re pinterest & copyright…I didn’t know about this until I had put a lot of work into it http://t.co/h6VWLDCv
JoBrodie #nhssm Here’s the patient safety / @chi_med / devices Pinterest board I’ve started – I only use Flickr CC images http://t.co/TIjuXU73
sarahkatenorman NHS Northwest is on pintrest video wall #nhssm http://t.co/TRgJujFW
Sasha_Taylor This Is Everything You Need To Know About Pinterest (Infographic) #nhssm http://t.co/puRczpzg

 

Chat summary: Looking back to go forward

Here’s a short write-up of this week’s chat to help people catch up.

We draft these posts live during the chat to save time and hopefully capture the most important points that people make. If you think we’ve missed something really important please add it in the comments below.

Please do pass this around to your colleagues and friends!

Main points of discussion

1. Increasing workloads for digital teams – are they being adequately resourced?
2. Could pure digital teams be the future?
3. New on the scene – incorporating Pinterest into the social media toolkit.
4. Need for research – e.g.  the differences in social media use at trusts with open WiFi and closed WiFi.

Tweets of the evening
Caveat: not everything, just what we could keep up with!

JonPaulLittle On a train after a long day #nhssm here’s a thought if people want purely digital roles could a digital team cover a geographical area?

dgfoord @a_double_tt And we’ve had @patientopinion getting funding from @DHGovUK to expand into Social Care #nhssm

colinwren @JonPaulLittle I think the key to this type of team would specialism in each tool. Spend all day tweeting and knowing API etc #nhssm

a_double_tt @JonPaulLittle Digital only team v impt in future. They could work over a national area. Lots of change re line management etc tho #nhssm

RachCarrell #nhssm @colinwren Pinterest could be very useful for self care though

Sasha_Taylor @JonPaulLittle make it creative commons licence so others can use/incorporate. Public sec should not be charging other public sec #nhssm

ClaireOT If you’re motivated, there’s no reason why you can’t get social media projects signed off in #NHS as clinicians #nhssm
Useful links shared

@DHgovuk’s #lungcancer campaign fuels a clinical discussion; on Twitter

 

@DHgovuk’s #lungcancer campaign fuels a clinical discussion; on Twitter

On Monday 08 May 2012 the Department of Health launched the latest branch of its Be Clear on Cancer campaign concentrating on #lungcancer. The campaign, designed to increase awareness of the symptoms and improve early diagnosis of lung cancer, got some +ve and -ve feedback on Twitter from HCPs…

Storified by Alex Talbott · Wed, May 09 2012 13:08:37

Please note: This is Storify isn’t trying to show up people as being wrong or right, there are clinical implications of the campaign and lung cancer I cannot hope to understand from my position. The Storify has been put together because what follows is an excellent example of using social media in healthcare and the lessons we can all learn from it.
The DH kicked the campaign off on Twitter at 07:35. Unfortunately they got the hashtag wrong. #lungcancer 
Lesson 1: Check the hashtag
Would you know how to spot the signs of lung #cancer? New campaign starts today to raise awareness: http://ow.ly/aLw0LDepartment of Health
As NHS organisations followed the prepared tweets to support the campaign across multiple Twitter accounts feedback started coming in.
Not sure I approve of these "coughing for 3 weeks =lung cancer" adverts. The average length of a viral cough is 3 weeks! So don’t panic…..Dr Ellie Cannon
Of course GPs will be happy to see any cough, but I don’t think a young non-smoker should be panicking with a 3week coughDr Ellie Cannon
@Dr_Ellie Agree Ellie. Must be some stats to support that. #alarmistDamian Fogarty
Dr Ellie Cannon is the resident GP at The Sunday Mail by the way. She has 4,100+ followers and is very engaging on Twitter, often starting and contributing to health conversations with other health professionals and members of the public. I think she is a leading light for GPs on Twitter.
Others joined the negative feedback, too.
@Dr_Ellie Does this mean everyone with a cough of three weeks will be expecting an x ray or even worse a CT scan?Dr Sam
@elinlowri @dr_ellie has any work gone into looking at how many GP consultations this might take up?Dr Sam
@DrSam_UK I’m not sure who advised the DoH on this. An odd campaign. The bowel cancer one was good, but this is misguided.Dr Ellie Cannon
@Dr_Ellie going to be jamming up your surgeries with coughs for weeks to come I’m sure…. #healthinfofailKate
While some people pointed out a need to inform.
@Dr_Ellie Rheumatolgoist spotted my mum had persistent cough & referred to oncologist. 2 tumors & lung removed & doing well 18 months laterMaria Moyses
@Maria_Moyses of course a persistent cough in a minority may indicate cancer. But not everyone with a 3 week cough has cancer.Dr Ellie Cannon
@PaulBurstow Secondly, this 3 week cough business. Why don’t the adverts mention age or other causes? It causes unnecessary panicDr Ellie Cannon
@PaulBurstow You are not going to reduce lung cancer incidence this way. It doesn’t even heighten awareness as the health message is wrong.Dr Ellie Cannon
I was very happy to see other health care professionals felt comfortable enough to join the debate. How many would have two years ago?
@Dr_Ellie Based on NICE guidance on lung cancer http://guidance.nice.org.uk/CG24. I was discussing this w @elinlowri & @mlalanda last night. @drsam_ukJohn Cosgrove
NHS bureaucrats got a mention. Nice.
@Dr_Ellie @DrJohnCosgrove Another unresearched/un-evidenced screening test (3 wks cough not a red flag] marketed by NHS bureaucrats………DrKole
The research and evidence behind the campaign got questioned. A fair logical question.
CXR = Chest X-ray.
@DrJohnCosgrove @Dr_Ellie @elinlowri @mlalanda @drsam_uk It’s also based on this research http://www.ncat.nhs.uk/our-work/diagnosing-cancer-earlier/evidence-and-sharing-learning I’m not sure it’s good enoughMartin Brunet
@DocMartin68 Seems to be all about getting ppl to request CXRs. No justification of 3 weeks as opposed to 4 (better) or 2John Cosgrove
@DrJohnCosgrove Agree- the research seems to see more CXRs as an end in itself, when it is a cost not a benefit. 4/5w would mean far fewerMartin Brunet
@DrJohnCosgrove @Dr_Ellie Let alone unnecessary radiation for the wrong indications, CXR is not a good tool to detect early lung Ca.DrKole
Some wanted to change the campaign all together
@DocMartin68 How can we get this campaign changed?John Cosgrove
@DrJohnCosgrove Difficult! It’s from @DHgovuk so perhaps they could comment on our concerns. I’m working on a blog to try to help our ptsMartin Brunet
@DrJohnCosgrove Or alternitively, if only we could find a GP who works for a national newspaper to write about it…know anyone?…@Dr_EllieMartin Brunet
Importantly the discussion was highlighted to the DH via the above @mention, but no comment was forth coming and at the time of writing (17:00, 09 May 2012) none had been sent. An opportunity missed to help shape the debate and highlight a few other perspectives. 

Lesson 2: replies to your @mentions.
In place of the DH others came to the defence of the campaign.
@Dr_Ellie @stevenowottny Ad does not say 3 weeks = lung cancer, says get it checked. UK lung cancer mortality way behind best & gap wideningCiaran Devane
Ciaran Devane is the Chief Executive of MacMillan Support, by the way and a non-executive director and the NHS Commissioning Board.
@Dr_Ellie @drsam_uk Advisers include national lung cancer leads plus GP reps at every stage. No change to NICE guidelines for 2ww referral.Elin Roddy
Elin Roddy is a respiratory doctor.
Further concerns came to the fore.
URTI = Upper Respiratory Tract Infections (chest infection)
XR = X-ray
@ciarandevane @stevenowottny Maybe so but the majority of 3 weeks coughs will be from URTIs and allergies. Will everyone now need a chest XRDr Ellie Cannon
@elinlowri @drsam_uk But the top line is "3week cough" which includes so many more common differentials seen in primary care.Dr Ellie Cannon
@elinlowri 3 weeks of cough alone cannot be specific for lung cancer by any definition, surely. URTI far more likely. @drsam_uk @dr_ellieJohn Cosgrove
@Dr_Ellie @elinlowri what percentage of the population with a three week cough have lung cancer?Dr Sam
@elinlowri @TheNiceLadyDoc @drsam_uk Practice is already full of panicked patients. And we’ve been warned about advert increasing consultsDr Ellie Cannon
More support for the campaign was also forthcoming.
@Dr_Ellie @drsam_uk Absolutely. NICE referral guidelines 4 CXR say ‘unexplained’ cough. I’m not the right person to ask after my day today!Elin Roddy
.@elinlowri @Dr_Ellie @drsam_uk In GP we’d usually be treating first: antibiotics/ inhaler/PPI, depending on likeliest cause. Then CXR/referThe Nice Lady Doctor
@TheNiceLadyDoc @dr_ellie @drsam_uk Yes. And you see much more cough than we do. This campaign doesn’t override common sense and judgement.Elin Roddy
@DrJohnCosgrove @drsam_uk @dr_ellie Dr still has room for discretion and good clinical judgement – key is ‘unexplained’ cough and pt risk?Elin Roddy
@DrJohnCosgrove @drsam_uk @dr_ellie Around 60% of patients with lung cancer have cough as an early symptom. More specific than other Sx.Elin Roddy
There was also a mention of patient expectation management.
@elinlowri But ppl are being given to expect medical intervention at 3 weeks. Feeds into existing misapprehensions.@drsam_uk @dr_ellieJohn Cosgrove
A GP capacity continued to be a concern.
@DrJohnCosgrove @elinlowri @drsam_uk clinical skills and good history taking will be key as ever. If we have the capacity to see everyone!Dr Ellie Cannon
Lesson 3: Plan what you’ll do and who you can count on if negative feedback comes your way.

Now, all this is a very interesting exchange if you’re in my game of healthcare social media. Some good give and take on the evidence front, great links shared, good use of mentions and people willing to have an opinion. Super.

Luckily for the DH the #lungcancer hashtag was left out of the discussion.
In the conspicuous absence of a DH social media reply to the feedback I’m going to put my neck out as a non-clinician and provide a counter point to the genuine concerns above. To be fair, the DH have provided (via other channels) answers to all of the concerns and I am only re-highlighting them in the below.

First up the NICE guidance

Go to page eight to see that they include the three week cough as a symptom of lung cancer.
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Now the GP briefing

Have a quick read below, it’s only two pages long. 
In summary though here are the points I picked up on:
The campaign aims to “…improve early diagnosis of lung cancer by raising awareness of symptoms…”. That is the campaign is not trying to prevent people getting lung cancer.
The campaign is aimed at ”men and women from lower socioeconomic groups over the age of 55″. This should help stop people under 30 presenting with three week coughs
The issue of a three week cough being a cross over symptom is half dealt with by deciding to run the campaign in summer on the recommendation of health care professionals. The briefing also states, “Continue to use your clinical judgement and refer to secondary care, as appropriate”, i.e. don’t just send every three week cough for an X-ray.
Looking at the issue of overwhelming GPs. The pilot in the Midlands found an average 2.4 more patients visited their practice per week with lung cancer symptoms. Therefore on average a single GP practice or a practice of six GPs both can expect to see an increase of 2.4 patients per week for the duration of the campaign (08 May to the end of June 2012). Not that many I think. Unfortunately I haven’t yet found data on per 1,000 of the population.
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Lung cancer awareness evaluation – some stats

Below is the PDF of the evaluation of the pilot campaign. I have reproduced the conclusion (pg 17) below for your convenience.

“The analysis of GP data shows an increase in attendances which corresponded with the start of the campaign, and continued for three weeks after the campaign ended.

For the 35 practices included in the evaluation, there were 670 more attendances for patients with cough symptoms during the eight weeks from the start of the campaign in 2011 compared with 2010 – an increase of 23%.

The increase in activity was driven by attendances for patients with a cough – the key symptom directly referred to in the TV and radio campaigns and on posters. Other marketing channels such as leaflets and the Cancer Research website listed other possible symptoms; however there was no discernible increase for these.

The highest impact was seen in the 55 to 59 age band which saw an increase in attendances of 52%. This corresponded with the beginning of the age group targeted for the campaign (the over 55s). However, results show attendances also increased for patients from the age of 30 through to 85 but tailed off for the 85+.

Despite the increase in activity, the practice level analysis show that the impact for each practice was relatively small, with an average of 2.4 additional visits per practice per week.”

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There is even more info on the evaluation and research of diagnosing cancer earlier on NHS National Cancer Action Team’s website. 
If you’re interested have a read through some of it.

As a final comment…

This storify shows how open clinicians are when talking about healthcare campaigns online. This should be seen as a valuable source of feedback and engagement. It shows that the DH and its partner agencies are going to have to up their games considerably. Next time the negative feedback might use the hashtag and spread further.
And it shows a glimmer of just how much work is needed to go into these nationwide campaigns. This campaign is backed by Cancer Research UK, The Royal College of GPs (national level) and the NHS’s National Cancer Action Team, it has been through an extensive pilot and testing phase and clinical stakeholders have been ask for their views throughout the process. It looks like decent stakeholders relations have been worked on. Yet there remain genuine concerns on the front line that it isn’t right. Next time how then could they get the points I raise above (basically the PDFs) across to healthcare professionals better?

Chat summary: the use of narrative in social media

Here’s a short write-up of this week’s chat to help people catch up.

We draft these posts live during the chat to save time and hopefully capture the most important points that people make. If you think we’ve missed something really important please add it in the comments below.

Please do pass this around to your colleagues and friends!

 

 

 

 

 

 

 

 

 

Main points of discussion

1. Different types of tools to enable you to tell stories – Pinterest, Storify
2. What does your online persona say about you?
3. Stories and the people telling them need to be authentic
4. Communications teams should plan their narratives to be aligned to corporate objectives and ensure there is enough capacity to complete the narrative

Tweets of the evening
Caveat: not everything, just what we could keep up with!

VictoriaBetton The lovely @sallyannr93 has been blogging to support our campaign http://t.co/Za7ni9Qv sort of thing you mean? #nhssm

@VictoriaBetton @Gemma_Finnegan I like messing about with it [Pinterest] personally. Considering using to capture our campaign in pictures as it unfolds #nhssm

lizmrawlins @VictoriaBetton could work well for campaigns! Especially as the develop/unfold/succeed #nhssm

@claireOT: I think the narratives unearthed by@patientopinion are great- Im amazed not all Trusts engage in it #nhssm

a_double_tt There is a point here around repet’n of the narra to help ppl come across it 2nd/3rd/4th time round, keep consistency & aid learning

@MarkOneinFour: I think the important thing is to build you narrative from little bits over time, not expect one splash and youre there

Useful links shared

Source Description Link
@Gemma_Finnegan Web 2.0 and social media: new tools for patient empowerment and narrative medicine. http://bit.ly/In6A9C
@Gemma_Finnegan Narrative and Medicine http://bit.ly/In77sl
@ColinWren Narrative is used in web user experience design to help w/ understanding of information, something to learn from? http://t.co/nvTDH5Nf
@jkerrstevens Timeline for Pages: when the social media crisis comes from the past | YDL http://bit.ly/IndLi3
@JonPaulLittle Good narrative definition here http://t.co/H09L0IQL

 

Heart of England NHS Foundation Trust CEO to chat on Twitter all day, 03 May

Here’s the Trust’s press release. It’s a good and transparency driven initiative we reckon…

Open day ‘tweet’ with Hospital CEO

Posted on 30 April 2012. Tags: 

He may be the boss of one of the country’s biggest health organisations but that doesn’t mean Heartlands Hospital’s Chief Executive, Dr Mark Newbold has no time to listen to patients. Indeed, hearing the views of patients and people in the local community is a top priority for him.

Already a regular tweeter, Dr Newbold will be available to have an open Twitter chat with the public on 03 May. The Hospital’s CEO will answer any questions relating to Heartlands, Good Hope and Solihull Hospitals, Birmingham Chest Clinic and Solihull community services, which are all covered by Heart of England NHS Foundation Trust. To join in, tweet @drmarknewbold. The hashtag will be #trustchat.

Dr Newbold said: “This is a great opportunity to interact directly with patients and members of our local communities. We aim to be open and transparent and I am particularly keen to use the advantages offered by social media to encourage frank conversations. Using Twitter will enable me to have direct dialogues with a large number of people in one day. What patients want and need is at the centre of all our planning for the future of our services so hearing the views of the people we serve is crucial.”

If you would like to join the Twitter chat but don’t have a Twitter account, go to twitter.com and follow a few easy steps to set one up.

Anyone can contact the Trust at any time with questions or concerns by calling the patient services team on 0121 424 0808 or writing to patientservices@heartofengland.nhs.uk . Dr Newbold can also be written to at the same address or emailed on mark.newbold@heartofengland.nhs.uk

Chat Summary: Geo-locations and Healthcare

 

Here’s a short write-up of this week’s chat to help people catch up.

We draft these posts live during the chat to save time and hopefully capture the most important points that people make. If you think we’ve missed something really important please add it in the comments below.

Please do pass this around to your colleagues and friends!

Main points of discussion

  1. Will geotagging ever become mainstream?
  2. Healthcare is very personal so why would people tell their online friends/followers they’re undergoing treatment?
  3. Could geotagging be used to promote attendance at NHS Trust AGMs and consultation meetings?

Tweets of the evening
Caveat: not everything, just what we could keep up with!

@colinwren: @Sasha_Taylor I see acute trusts having more luck than PCT due it being more centralised around one location #nhssm

a_double_tt @Sasha_Taylor Good point. It could be used like that to show people are attending, i.e. nudge behaviours towards attendance perhaps? #nhssm

@claireOT: Has anyone looked into the utility of geo-tagging when making decisions with Choose and Book?#nhssm @anniecoops #nhssm

@salma_patel: Has a #nhssm chat covered gamification? Gamification of healthcare would be an interesting topic to cover

Useful links shared

amcunningham @Sasha_Taylor see my blog for the whole story! All’s well that ends well:) http://t.co/4d2mnEHt #nhssm
Sasha_Taylor @a_double_tt @colinwren you may want to read my blog here http://t.co/ug3IAjmM explains some issues from another project #nhssm
Colin Wren ?@gemma_finnegan @salma_patel Here’s a quick search http://nhssm.org.uk/tag/geolocation/ #nhssm
salma_patel @claireOT That is really useful, many healthcare apps do that like Bristol app and WellNote, more here:http://t.co/lruUQvzL #Nhssm

Chat Summary: Hyperlocal and Health

Here’s a short write-up of this week’s chat to help people catch up.

We draft these posts live during the chat to save time and hopefully capture the most important points that people make. If you think we’ve missed something really important please add it in the comments below.

Please do pass this around to your colleagues and friends!

Main points of discussion

  1. Use the channels already out there, it’s easier, cheaper and they are trusted
  2. Approach the local online community leader(s) before you dive into engagement online. E.g. ask permission to post from the forum moderator and always introduce yourself as an employee of your organisation.
  3. Don’t spy.
  4. Use offline as well as online channels (a coffee in a cafe, for example) to connect and build relationships with local bloggers.

Tweets of the evening
Caveat: not everything, just what we could keep up with!

ajax_63 @a_double_tt Hi Alex, interesting topic! partnering, permission
& relevance of the group to your #socialmediaobjectives seem key

dgfoord @MarkOneinFour Also important to reflect style and format of community you’re engaging in

LewisCade @Dr_Ellie @sasha_taylor I agree but the culture in#NHS is when asked about eComms is all well we won’t reach everyone

Useful links shared

Sasha_Taylor Rather old post of mine about bloggers/hyper local peeps and Comms http://t.co/QfF9m4A4
colinwren @DrNickJenkins There’s a few websites that offer this in a map style http://t.co/bb5P8tft is an example
lizmrawlins bit late to the #nhssm party tonight but here’s a very good read by @getgood all about the busy hyperlocal scene in Cdf http://t.co/gnCpkbIa

Nursing in Practice: Social networking for nurses

A while back #nhssm was approached by Nursing in Practice to write an article on social networking. This was great for two reasons:

  1. A nursing trade publication was proactively looking to get nurses thinking about social media and its potential (pros and cons)
  2. #nhssm was approached as a source of subject matter experts which makes us feel good :)

Colin duely stepped up to the mark and produced a professional and wide-ranging article giving an introduction to the types of network, how they are used, how to work around barriers to take-up, guidelines and the implications for nurses.

Have a read of the article on YUDU and tell us what you think.

The use of narrative in social media

Here’s a Slideshare that introduces storytelling through social media. As you will have guessed the elements of storytelling that have held true for 1000′s of years remain, it’s just how they’re used online that is slightly different. Have a flick through the slides and bring any ideas, questions or comments to the chat, 8pm-9pm tonight.

See you there!

An example of a Storify: @NHSConfed nails it

@NHSConfed nails it

There is *a lot* of talk in the NHS about what to do when someone contacts your organisation on Twitter. Should there be policies and sign off processes? Can you trust your staff to make the right call on their own? @NHSConfed got it spot on in this instance.

Storified by Alex Talbott · Sun, Apr 29 2012 09:47:27

While writing up a newsletter that goes out to all NHS comms and engagement staff in London I wanted to link to the NHS Confederation’s briefings page. I find their briefings a very handy and informed guide to topics of the day/week/month and thought it would be good to get more people to read them via a RSS feed. 
The problem was there was no RSS feed on the briefings webpage, so I tweeted @NHSConfed…
@nhsconfed please could you guys put a RSS feed on your briefings publication page?Alex Talbott
and they replied…
@a_double_tt We have! See the bottom of the publications homepage – here also the direct link to the feed http://bit.ly/IhDRrDNHS Confederation
But that linked to all publications from @NHSConfed and I only wanted the briefings on an RSS. I tweeted once again…
@nhsconfed Wkd, thanks. Could you pop one up on the briefings only page too? http://bit.ly/IGPX9QAlex Talbott
@nhsconfed p.s. I’m promoting the briefings in a newsletter, hence the QAlex Talbott
@a_double_tt But of course! ;-) http://bit.ly/I7LlXYNHS Confederation
@nhsconfed thanks!Alex Talbott
In an hour and a quarter the NHS Confederation team had helped me out with my newsletters and improved their website (IMHO) with no fuss and I doubt a process or policy was in sight.
What a lovely example of how Twitter can make the small things work.